OrphanDev | Réseau national d'expertise F-crin dédié aux maladies rares

Welcome to our new site

We are pleased to introduce you to OrphanDev, the FCRIN expertise network dedicated to rare diseases

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OrphanDev Presentation

Bringing solutions to patients with rare diseases

This is the raison d'être of the OrphanDev network and the shared objective of each of its members: whether they are researchers, caregivers, patient(s) representatives, entrepreneurs serving innovation and treatments, representatives of health authorities.

Consult - Collaborate - Think together - Mobilize - Act

To make faster progress in the fight against rare diseases

million people living with a rare condition in France

7000

rare diseases identified

25%

of patients still waiting for a diagnosis after 5 years

95%

of rare diseases without therapeutic options

Carte des membres du réseau

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