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Welcome to our new site
We are pleased to introduce you to OrphanDev, the FCRIN expertise network dedicated to rare diseases
OrphanDev Presentation
Bringing solutions to patients with rare diseases
This is the raison d'être of the OrphanDev network and the shared objective of each of its members: whether they are researchers, caregivers, patient(s) representatives, entrepreneurs serving innovation and treatments, representatives of health authorities.
Consult - Collaborate - Think together - Mobilize - Act
To make faster progress in the fight against rare diseases
3
million people living with a rare condition in France
7000
rare diseases identified
25%
of patients still waiting for a diagnosis after 5 years
95%
of rare diseases without therapeutic options
Carte des membres du réseau
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