• Welcome to our new site

    We are pleased to introduce you to OrphanDev, the FCRIN expertise network dedicated to rare diseases

OrphanDev Presentation

Bringing solutions to patients with rare diseases

This is the raison d'être of the OrphanDev network and the shared objective of each of its members: whether they are researchers, caregivers, patient(s) representatives, entrepreneurs serving innovation and treatments, representatives of health authorities.

Consult - Collaborate - Think together - Mobilize - Act

To make faster progress in the fight against rare diseases


million people living with a rare condition in France


rare diseases identified


of patients still waiting for a diagnosis after 5 years


of rare diseases without therapeutic options

Carte des membres du réseau

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Our partners

  • inserm
  • ecrin
  • ariis