OrphanDev presentation

An unprecedented public/private multi-partner platform

The current OrphanDev project brings together around fifty actors in the field of rare diseases, both academic, private and civil society.

The development of the network stems from a triple need:

  • transversality: space for dialogue and consultation to gain complementarity and efficiency
  • greater decompartmentalization between the industrial and academic spheres by improving dialogue and processes: public-private interface
  • providing facilitating expertise to accelerate the availability of innovations for patients: removal of administrative, regulatory and legal obstacles

OrphanDev is a public-private collaborative network.

It is led by a hard core of founding members. Around fifty experts in rare diseases take part in its work. They represent 4 main types of stakeholders.


Updated on 02 August 2023